{"id":314,"date":"2018-04-24T10:20:28","date_gmt":"2018-04-24T10:20:28","guid":{"rendered":"http:\/\/edren.org\/ren\/?page_id=314"},"modified":"2023-04-18T13:37:43","modified_gmt":"2023-04-18T13:37:43","slug":"got-pkd","status":"publish","type":"page","link":"https:\/\/edren.org\/ren\/edren-info\/polycystic-kidney-disease-pkd\/got-pkd\/","title":{"rendered":"Got PKD?"},"content":{"rendered":"<h5><big><strong><span style=\"color: #993300; font-size: 17pt;\">Treatments are becoming available<\/span><br \/>\n<\/strong><\/big><\/h5>\n<p>If you are from a family with PKD\u00a0(Autosomal\u00a0Dominant Polycystic Kidney Disease), now it&#8217;s worth knowing<\/p>\n<ul style=\"list-style-type: disc;\">\n<li><strong><span style=\"color: #993300;\">Have I got it?<\/span> <\/strong>&#8211; At least if you&#8217;re over 18 years, it&#8217;s worth knowing this.<\/li>\n<li><strong><span style=\"color: #993300;\">Could\u00a0I benefit from treatment?<\/span><\/strong> &#8211; You should get an occasional check to see whether you could be on treatment to slow PKD.<\/li>\n<\/ul>\n<p>This guidance comes from the Edinburgh Renal Unit. However it may be more widely useful.<\/p>\n<h5><strong><span style=\"font-size: 17pt; color: #993300;\">More about PKD and its treatment<\/span><\/strong><\/h5>\n<p>Autosomal\u00a0Dominant Polycystic Kidney Disease (PKD for short)\u00a0is an inherited condition that causes kidney cysts, and some other problems. In some people it causes kidney failure. It usually runs in families, but sometimes comes up as a new diagnosis. [<a href=\"http:\/\/edren.org\/ren\/edren-info\/polycystic-kidney-disease-pkd\/\">more about PKD<\/a>]\n<p>The first treatment to slow down PKD, <strong><span style=\"color: #993300;\">Tolvaptan<\/span><\/strong> (Jinarc), has been available in the UK since 2016. It does have side-effects, and it has to be taken for many years to get benefit from it. So it is reserved for people more likely to develop kidney failure. The main ways of spotting this is by watching kidney function (but it is quite late when this falls), and measuring kidney size. But your family&#8217;s experience, and the exact mutation (if known) may give additional information. There is more information about this<\/p>\n<div style=\"display: none;\"><a href=\"https:\/\/www.pornobonjour.com\/category\/video-porno\/\">video porno<\/a> <a href=\"https:\/\/www.gotpornhub.com\/category\/schoolgirl\">schoolgirl porn<\/a> <a href=\"https:\/\/thaiporn.vip\/%E0%B8%AB%E0%B8%A1%E0%B8%A7%E0%B8%94%E0%B8%AB%E0%B8%A1%E0%B8%B9%E0%B9%88\/xhamster\">xhamster<\/a> <a href=\"https:\/\/filmporno.video\/categoria\/youporn\">youporn<\/a> <a href=\"https:\/\/www.viexas.com\/category\/malay-porn\">malay porn<\/a><\/div>\n<ul style=\"list-style-type: disc;\">\n<li>In our <a href=\"http:\/\/edren.org\/ren\/edren-info\/polycystic-kidney-disease-pkd\/\">full patient info<\/a> (this link goes straight to the Treatment section). It is quite detailed, and suitable for all readers.<\/li>\n<li>For healthcare professionals, from our <a href=\"http:\/\/edren.org\/ren\/handbook\/unithdbk\/pkd\/\">Tolvaptan algorithm<\/a> and prescribing information.<\/li>\n<\/ul>\n<p>Anyone can read either of these. Note that the guidance relates to Scottish availablity of Tolvaptan. It is not available in all countries.<\/p>\n<h5><strong><span style=\"color: #993300;\">Additional info<\/span><\/strong><\/h5>\n<ul style=\"list-style-type: disc;\">\n<li><a href=\"http:\/\/edren.org\/ren\/edren-info\/polycystic-kidney-disease-pkd\/pkd-short-info\/\">Short introduction to\u00a0PKD<\/a> &#8211; a shorter and simpler introduction<\/li>\n<li><a href=\"http:\/\/edren.org\/ren\/edren-info\/polycystic-kidney-disease-pkd\/\">Full information about PKD\u00a0for patients and others<\/a>, including treatment with Tolvaptan<\/li>\n<li><a href=\"http:\/\/edren.org\/ren\/handbook\/unithdbk\/pkd\/\">Details of our PKD pathway<\/a> &#8211; mainly for referring GPs and specialist professionals. Shortcut <a href=\"http:\/\/bit.ly\/pkdedren\">bit.ly\/pkdedren<\/a><\/li>\n<\/ul>\n<p><span style=\"font-size: 12pt;\"><strong>Acknowledgements:<\/strong>\u00a0 The author of this page was Neil Turner. It was first published in April 2016. The date it was last modified is shown in the footer.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Treatments are becoming available If you are from a family with PKD\u00a0(Autosomal\u00a0Dominant Polycystic Kidney Disease), now it&#8217;s worth knowing Have I got it? &#8211; At least if you&#8217;re over 18 years, it&#8217;s worth knowing this. Could\u00a0I benefit from treatment? &#8211; You should get an occasional check to see whether you\u2026<\/p>\n<p> <a class=\"continue-reading-link\" href=\"https:\/\/edren.org\/ren\/edren-info\/polycystic-kidney-disease-pkd\/got-pkd\/\"><span>Continue reading<\/span><i class=\"crycon-right-dir\"><\/i><\/a> <\/p>\n","protected":false},"author":2,"featured_media":0,"parent":310,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"class_list":["post-314","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/pages\/314","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/comments?post=314"}],"version-history":[{"count":4,"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/pages\/314\/revisions"}],"predecessor-version":[{"id":3109,"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/pages\/314\/revisions\/3109"}],"up":[{"embeddable":true,"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/pages\/310"}],"wp:attachment":[{"href":"https:\/\/edren.org\/ren\/wp-json\/wp\/v2\/media?parent=314"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}